tag:blogger.com,1999:blog-8382807.post8192903508664678261..comments2023-11-02T06:15:52.606-04:00Comments on from the mind of me: Ehlers-Danlos Follow-Upkristinhttp://www.blogger.com/profile/00231506194793708086noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-8382807.post-32726933470433303252008-09-26T21:41:00.000-04:002008-09-26T21:41:00.000-04:00Yes, one of my orthopaedists said I should get an ...Yes, one of my orthopaedists said I should get an appointment with the genetics group at Hopkins. I am fortunate that I live "near enough" to Baltimore that it wasn't out of the question (it's about 90 minutes from where I live, and my parents live closer to there). I'll be writing a post soon (maybe this weekend) about my visit, which happened ~2 weeks ago. I went to the <A HREF="http://www.hopkinsmedicine.org/geneticmedicine/" REL="nofollow">McKusick-Nathans Institute of Genetic Medicine</A>.kristinhttps://www.blogger.com/profile/00231506194793708086noreply@blogger.comtag:blogger.com,1999:blog-8382807.post-62947944473669248692008-09-26T20:11:00.000-04:002008-09-26T20:11:00.000-04:00Were you referred by your doctor to a genetic coun...Were you referred by your doctor to a genetic counselor? I, too have EDS and my family practice doc doesn't seem to know much about it.For the Love of Paper Craftshttps://www.blogger.com/profile/01947999122767454353noreply@blogger.com